VibeCast is our weekly informational podcast and content series exploring the hottest topics in drug development and Web3 with some of the dynamic people that make up the Vibe community.
In this episode, VibeCast host Ray Dogum speaks with Gunnar Esiason, MBA MPH. Gunnar is currently a principal at Florence Healthcare. He shares his experience as a Cystic Fibrosis (CF) patient/advocate, fundraising with his father Boomer Esiason at the Boomer Esiason Foundation, and the current state of CF Clinical Trials.
Gunnar's Socials:
https://www.linkedin.com/in/gunnar-esiason-676403126/
https://twitter.com/G17Esiason
www.instagram.com/esiason17g
Website: www.GunnarEsiason.com
00:00:00 - Introduction
00:01:25 - About Gunnar's Experience with Cystic Fibrosis
00:08:01 - Public Visibility of CF Advocacy
00:11:36 - Cystic Fibrosis Fundraising
00:14:01 - Patient Connection to Sponsors in Clinical Trials
00:14:44 - Running Out of Options
00:16:14 - Participating in a Clinical Trial
00:19 :28 - Trikafta and Rare Mutations
00:22:34 - Renewed Prescription to Life
00:26:34 - Improving the Consent Process
00:29:36 - Development of Cystic Fibrosis Treatments
00:32:49 - Trikafta Baby Boom and IVF Grants
00:35:17 - Cystic Fibrosis Drug Pipeline
00:37:20 - Battle Against Rare Disease Medications
00:44:58 - Market Price of Trikafta
00:45:19 - Social Contract Between Biotech and Insurance Industry
00:46:10 - Concerns About Antibacterial Resistance
00:50:14 - Future Goals and Plans for Advocacy Work
00:51:29 - Final Thoughts
VibeCast is a collection of long-form and short-form video content intended to help our community learn about the current opportunities and challenges in biotech fundraising and community engagement innovation.
Guests will include biotech founders, regulatory experts, drug development executives, blockchain technologists, web3 community builders, patient community advocates, and many other Vibe Bio community members seeking to accelerate the development of breakthrough treatments.
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Disclaimer: VibeCast is intended to be used for educational and entertainment purposes, and no information or opinions shared constitute advice or services. While guests are invited to listen, listeners acknowledge they are not being provided professional advice from the podcast or the guests. The podcast is for private non-commercial use and guests do not necessarily reflect any agency, organization, or company that they work for.
